Still Alice: Bringing Alzheimer’s into the Spotlight + Book Giveaway

This is so important. We must do all we can to inform and educate everyone about this devastating disease. Although fiction, “Still Alice” is an excellent tool to help inform those few, who as of yet, are untouched by Alzheimer’s disease. I pray you are never touched but we are all affected and must work too hep and inform each other.

The Long and Winding Road...

“Interesting subject, seems it’s becoming very topical.”

Last week, I attended a wonderful fundraiser featuring Dr. Lisa Genova, author of the New York Times best selling novel, Still Alice.

I overheard the aforementioned statement at the reception prior to the main event. Becoming very topical??? Excuse me if I’m a bit passionate, but this illustrates the fact that we have much more work to do. While awareness has increased significantly over  the past 10 years, the mainstream population still doesn’t grasp the gravity of the epidemic we’re facing.

Those of us personally affected understand the urgency surrounding Alzheimer’s. We are terrified that we might be next. This disease has changed our perspective in countless ways, but there are too many people who are still in the dark. It’s often said there are two kinds of people; those who have been personally touched by Alzheimer’s and those who will be.

Educating…

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Assisted Living Directory

It’s wonderful when someone discovers my website/blog and asks to be mentioned and linked to their website! This site, “Assisted Living Directory” is just one example. David Bisnette, Founder/Editor of same contacted me when he discovered my website/blog and asked if I’d consider linking to his site. After looking at his site, I am honored to do so.

“One of the differences between Assisted Living Directory and many other senior care sites is that we allow facilities to be contacted directly, and safely. Any licensed facility in good standing may appear on our site. Our editors and contributors have been through the process of finding assisted living for our own family members, and we work hard to share our experiences and expertise with our users! We also provide trusted ways for you to get additional help, should you need it!” – David Bisnette

Check it out, I’m sure you’ll be as impressed as I was and you’ll find information you may need someday…if not today. Blessings, Lj

 

“ACTing on Alzheimer’s: Live Well With Hope

The Lakes Area Memory Awareness Advocates Education Forum 2014 was a great event; well implemented in a wonderful environment with excellent speakers and vendors providing beneficial information in a user friendly format! I didn’t take any pictures but if you check out the LAMAA facebook page I’m sure you’ll find some there. “Like” LAMAA! lj

Lakes Area Memory Awareness Advocates (LAMAA)

The Purple Angel Project Goes To NAPA April 29th 2pm EST

My experiences over the past few years have proven to me the most valuable effort with regard to dementia is sharing our journey and allowing others to share theirs. We have no cure. We can help each other when we share and do all we can to secure funding for more research to find the cause and a cure for these dreaded diseases that rob us of our loved ones while they are still alive.

Alzheimer's Speaks Blog

mICHAEL_ELLENBOGEN_SPEAKINGMichael Ellenbogen will be presenting to NAPA Committee (National Alzheimer’s Project Act) asking them to get behind and support the Purple Angel symbol which is the new global symbol for dementia.  No longer is it acceptable for countries, organizations or individuals to be divided on this issue.  The disease touches far too many people, both those diagnosed as well as their family, friends, co-workers and communities.

Please send emails to support the Purple Angel Project to

napa@hhs.gov

after 2 PM eastern time on the 29th of April.

purple_angel_from_michael_raising_awareness_around_the_world

It is in the worlds best interest to join forces and use one symbol to describe and help raise awareness for the various types of dementia:  Alzheimer’s disease, Lewy Body Dementia, Frontotemporal Dementia, Vascular Dementia and all the others.

Lori La Bey Founder of Alzheimer's Speaks Lori La Bey Founder of Alzheimer’s Speaks

Lori La Bey, founder of Alzheimer’s Speaks is asking our readers to send emails…

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Upcoming Speaking Engagements

Easter is my favorite time of year, not just because it’s finally time for the snow to disappear and the green to show up but because of what it means to me spiritually. This is the most glorious time of year for Christians and also a time of great sadness as we reflect upon all that had to take place for us to be free from sin and live in His Grace, eternally. We are truly blessed.

Yet sometimes we forget the blessings as we struggle with the challenges of Alzheimer’s Disease. Our loved ones may or may not recognize us, they may be angry and confused, they may not even appear to have a real thought process going on any longer. BUT, they are our loved ones and we must always remember them as the loving, caring, vibrant, creative precious people we knew and loved before the disease that has so devastated our lives. We must treat them with the dignity and respect they deserve; keeping in mind that our good LORD treats us with His Grace, regardless of what we may deserve. He loves us and is always there for us in all circumstances and illnesses as well as in our moments of joy and success.

As I write today I’m reflecting on past speaking engagements that have resulted because of my journey with my Dad. I never imagined such heartache could be the instrument of such healing, support and the ability to help others as a tribute to the memory of my Dad.

Now I”m thinking about the two upcoming speaking engagements and praying for God to use me as an instrument of His love to share my journey for the benefit of others at these next to events. The first one is at Fairway Pines in Sauk Centre, May 1st, 2014 at 6:30 PM and it is open to the public.

Lakes Area Memory Awareness Advocacy (LAMAA) is hosting their annual educational forum May 20, 2014 and I have been invited to speak about my journey with Dad through Alzheimer’s Disease. This year the forum will be held at the Arrowwood Lodge in Baxter, MN. The theme is “ACTing on Alzheimer’s: Live Well with Hope”. Registration begins at 8:00 AM with the program beginning at 8:45 AM and ending at 3:00 PM. Registration is $15.00 and includes lunch. You can register at memoryadvocates@gmail.com or by calling Cassandra 218-822-5573.

I hope you’ll save these dates and I look forward to seeing you in either Sauk Centre or Baxter in May. In the meantime, “Live well with hope”. Lj

It’s Time To Expand Our Views On Dementia

Remembering each individual as he or she was prior to their journey with AD will go a long way toward helping family members deal with the devastation that is Alzheimer’s Disease or any dementia. Remember them while recognizing the uniqueness of their journey and yours as caregiver and/or family member and friend.

Alzheimer's Speaks Blog

It’s Time To Expand Our Views

By Lori La Bey founder of Alzheimer’s Speaks

Lori_040_1LQSoftCroppedIt is a common statement to hear someone say, “When you’ve met one person with dementia, you’ve met one person with dementia.”  I believe we need to expand this statement and also understand and accept that “Once you’ve met one care partner, you’ve met one care partner and that each and every environment we are in with a person with dementia is constantly changing.”  Nothing is a given.  We must be prepared for that.  We must develop a toolkit which can offer fluid and spontaneous tools to shift perceptions and reactions to care.  It it time to stop being limited by our fear of failure and instead switch to an attitude that we should be afraid of not trying!

My personal motto is, “It’s about progress, not perfection.”  We waste an awful lot of time, energy…

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